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About WDA
Who We Are

Our Mission

The Wilson Disease Association funds research and facilitates and promotes the identification, education, treatment, and support of patients and other individuals affected by Wilson disease.

Our Vision


Our vision is to be recognized for excellence as an international, non-profit health organization.

Support

The WDA provides a caring community that will offer each Wilson disease family information, guidance and emotional support. We are dedicated to education, advancing treatments, and finding a cure for Wilson disease.

  • When: October 7, 2017

  • Where: Various cities across the United States and Canada

  • Who: You and Everyone you know!

  • Why: To bring awareness and funding for WD

  • What: A walk- but not a standard, run-of-the-mill 5 or 10K.

There are three ways to participate: 1) sign up for a walk in a city in your region or 2) sign up as an individual and have your own walk. 3) Sponsor an event.

There is no prescribed length for the walk and we wanted to keep it simple by holding it in places where permits were not needed which add to the complexity and the cost. For example, our family is holding one at a park near our house and we will be walking 1-2 miles culminating with a picnic afterwards. 

Right now we are looking for people to host a walk in their city or town. You can complete the simple contact information form and the chairperson, a volunteer or Wilson’s Disease staff will get back to you. We show you how easy it can be. We don’t want you to worry about having hundreds or thousands of walkers. We want you and your friends to have fun and be safe. Our goal is to raise awareness of our disease while raising money for research. If your friends and neighbors can’t attend we hope you would encourage them to donate. You don’t have to handle cash because payments are received online. We get liability insurance and we make a web page for each city leader. Each city leader has been touched by Wilson’s Disease in some way we ask for a few brief paragraphs and a photograph for on your page. This works great to raise awareness because your neighbors and friends from church have no idea what Wilson’s Disease is. We help you compose those stories.

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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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