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About WDA
Who We Are

Our Mission

The Wilson Disease Association funds research and facilitates and promotes the identification, education, treatment, and support of patients and other individuals affected by Wilson disease.

Our Vision


Our vision is to be recognized for excellence as an international, non-profit health organization.

Support

The WDA provides a caring community that will offer each Wilson disease family information, guidance and emotional support. We are dedicated to education, advancing treatments, and finding a cure for Wilson disease.

Here is a list of physicians and institutions familiar with Wilson disease and/or accept Wilson disease patients.  This list is not inclusive, if your area is not listed, please contact the WDA office at This email address is being protected from spambots. You need JavaScript enabled to view it. for more information.

Austria

Prof. Dr. Peter Ferenci
Dept. Internal Medicine IV
Gastroenterology and Hepatology
University of Vienna
Vienna General Hospital (AKH)
Waehringer Guertel 18-20
A 1090 Wien
Austria
Phone: 43 1 40400 4741
Fax: 43 1 40400 4735


Brazil

Dr. Egberto Reis Barbosa
Dept. of Clinical Neurology
Hospital das Clinicas da USP
Rua Dr, Eneas de Carvalho Aguiar - 225
CEP 05403-000
Brazil
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Eduardo Cancado
Department of Gastroenterology
Hospital das Clinicas da USP
Rua Dr, Eneas de Carvalho Aguiar – 225
CEP 05403-00
Brazil
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website:  www.doencadewilson.org/

Canada

Dr. Eve Roberts
Hospital for Sick Children
Phone: (416) 813-7733
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Diane W. Cox, Ph.D, FCCMG, FRSC
Professor of Medical Genetics
Department of Medical Genetics
8-39 Medical Sciences Building (office 43B)
University of Alberta
Edmonton, Alberta T6G 2H7
Phone: 780-492-7501 (direct)
Medical Genetics Office: 780-492-0874 (Secretary)
Fax: 780-492-1998

China

Prof. Xiuling Liang
Department of Neurology
First Affiliated Hospital
Sun Yat-sen University of Medical Sciences
74 Zhongshang Road II
Guangzhou, 510080
China
Phone: 87755766 ext. 8290
Fax: 87750632
Web site: http://www.wilson-disease.com/

Costa Rica



Dr. Francisto J. Heiva
Escuela autonoma de Ciencias Medicas
Dr. A.V. Guzman
Aoartado 77-1007
San Jose
Costa Rica

Ethiopia



Richard Hodes, M.D., F.A.C.P.
P.O. Box 7600
Addis Ababa
Ethiopia
Phone: 251-1-613827/27
Fax: 251-1-612855

Germany



Prof. Wolfgang Stremmel, M.D.
University Hospital of Heidelberg
Department of Internal Medicine IV
Im Neuenheimer Feld 410
D-69120 Heidelberg
Germany
Phone: +49 6221 5687-01
Fax: +49 6221 564116

Dr. Karl Heinz Weiss
University Hospital of Heidelberg
Department of Internal Medicine IV
Im Neuenheimer Feld 410
D-69120 Heidelberg
Germany
Phone: +49-6221 56-37911
Fax: +49-6221 56-5255

India

Dr Sharat Varma
DNB, PhD (Paediatric hepatology)
European board certified in liver transplantation

Clinical lead consultant
Paediatric hepatology and gastroenterology
Max Hospitals - New Delhi (Saket, Gurgaon and PPG)
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: +91-11-66115050
Phone: +91-789-981-3007


ROWIKEM

Dr. Ashish Bavdekar
Associate Consultant
Pediatric Gastroenterologist
Liver and Gastroenterology Unit
Department of Pediatrics
T.D.H. Building, Ground Floor
K.E.M. Hospital, Rasta Peth
Pune 411011
India
Phone: 91-20-4037342/5538728
Mobile: 98220 56174
Fax: 91-020-6125603
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it.
Clinics for Wilson's Disease:
Mondays and Thursdays 11:00 a.m. - 1:00 p.m.

India - Mumbai
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 
Clinics for Wilson's Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)

Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India

Israel



Prof. Yaron Ilan, M.D.
Liver and Gastroenterology Units
Department of Medicine
Hadassah University Hospital
P.O. Box 12000, 91120 Jerusalem
Israel
Phone: 972-2-6420338
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Ran Oren
Liver Unit
Urasky Medical Center
Tel Aviv
Israel
Phone: 972-3-6974280

Italy



Dr. Giacomo Carlo Sturniolo
Universita Degu Studi Di Padova
Dept. Scienze Chirurgiche e Gastroenterologishce
Div. Gastroenterologia, Via Giustiniani, 2
Padova 35127
Italy
Phone: +39-49-8218726
Fax: +39-49-8760820
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Massimo Zuin, M.D.             
San Paolo School of Medicine - Clinica Medica
University of Milan
via A. Di Rudinì, 8
Milan 20142
Italy
Phone: +39.02.89129975
Fax +39.02.89123960
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Japan



Kenji Nakayama, Ph.D. 
Department of Clinical Pathology
Hokkaido Institute of Public Health
Phone: +81-11-747-2211 (Ex. 731) 
Fax: +81-11-736-9476

Moldova



Natalia Mocanu, MD
National Center for Reproductive Health and Medical Genetics
Str. Buresbista 82
2062 Chisinau
Republic of Moldova
phone/fax: +373 22 568466
email: This email address is being protected from spambots. You need JavaScript enabled to view it.

New Zealand



Edward J. Gane, MBchB, M.D., FRACP
Associate Professor of Medicine
New Zealand Liver Transplant Unit
Auckland Hospital
Park Road
Auckland
New Zealand
Phone: 00-649-529-4001
Fax: 00-649-529-4061
Mobile: 00-64-21-548-371 (LIVER1)

Poland



Anna Czlonkowska, M.D.
Dept. of Cerebrovascular Disease
Inst. of Psychiatry and Neurology
Sopbieskiego 1/9
PL-02-957
Warsaw
Poland
Fax: 4822-424023
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Romania



Cristina Maria Mihai, M.D.
Constanta County Hospital
Pediatric Department, 8-th Floor
145 Tomis Boulevard
Constanta 900591
Romania
Phone/Fax: +40 241 553334
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Razvan Iacob, M.D. 
Institutul Clinic Fundeni
Centrul de Gastroenterologie si Hepatologie
Sos. Fundeni 258
022328 Bucuresti, sector 2
Romania
phone/fax: +40 21 2410450

Serbia



Slobodan Kazic,M.D.
Zvezdara Hospital
Dimitrija Tucovica 161
11000 Belgrade
Serbia
e mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: +38 111 241 0275

United States



University of Michigan Hospital 
Fred Askari, M.D., Ph.D. 
Director
Associate Professor
University of Michigan Hospital 
Liver Clinic
1st floor Taubman Center Area G
Ann Arbor, Michigan 48109
Phone: 800-333-9013
Fax: 734-763-4574
Appointments 800-333-9013 
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. George Brewer
Phone:  734-332-7810
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Joseph Eisenach
Phone: (816) 478-2000
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Sihoun Hahn, M.D., Ph.D.
Director, Biochemical Genetics Program
Seattle Children's Hospital
4800 Sand Point Way NE, Mailstop: B-6594
Seattle, WA 98105
Phone: 206-987-7610
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 

The pediatric team will see adult patients at the University of Washington.
For information/appointments (pediatric and adult) please contact:
Ashley Atkinson, RN, BSN, CPON
Appointments: Fax referral and records to (206) 985-3121
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Peter Hedera, M.D.
Assistant Professor
Department of Neurology
Vanderbilt University
465 21st Avenue, South
6140 MRB III
Nashville, TN 37232-8552
USA
Phone: (615) 936-3920 
Fax: (615) 322-5517
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Kris Kowdley, M.D.
Associate Professor of Medicine
Division of Gastroenterology/Hepatology
University of Washington
Seattle, WA
Phone: (206) 598-2076
Fax: (206) 598-6706
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Lorenzo Rossaro, M.D.
Professor and Chief
Division of Gastroenterology and Hepatology
University of California, Davis
Internal Medicine - Transplant
HSF 2nd Floor
2233 Stockton Blvd.
Sacramento, CA 95817
Phone: (916) 734-8686
Fax: (916) 734-8698
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Henrietta Salazar
UCLA School of Medicine
Department of Neurology
710 Westwood Plaza
Los Angeles, CA 90095
USA
Phone: (310) 206-9799
Fax (310) 206-9819
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Michael Schilsky
Yale University School of Medicine
333 Cedar Street/1080 LMP
P.O. Box 208019
New Haven, CT 06520-8019
E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
To schedule an appointment with Dr. Schilsky, 
contact Ms. Eta Kaplan at 203-737-1592

Fed Ex Address:
One Gilbert Street
FMP Bldg., Room FMP 408
New Haven, CT 06519

Miodra Velickovic, M.D.
Movement Disorders Center
Box 1637
Department of Neurology
The Mount Sinai Medical Center
5 East Street, 1st Floor 
New York, NY 10029-6574
Phone: (212) 241-5607
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Tamir Miloh, MD
Director of Pediatric Hepatology and Liver Transplant Medicine
Texas Children’s Hospital
Associate Professor, Baylor College of Medicine
Phone: 832-822-3671
This email address is being protected from spambots. You need JavaScript enabled to view it.

United Kingdom



Dr. Godfrey Gillett
Consultant, Clinical Biochemistry, Inherited
Metabolic Disease in Adults
Clinical Chemistry
Northern General Hospital
Herries Road
Sheffield S5 7AU 
United Kingdom 
Phone: +44 114 271 4316 
fax: +44 114 271 4505

Vietnam



Hoang Le Phuc, MD
Head
Department of Gastroenterology
Children's Hospital #1
341 Su Van Hanh
Ho Chi Minh City
Vietnam
This email address is being protected from spambots. You need JavaScript enabled to view it.

Pin It

Mary L. Graper
Mary L. Graper President
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She has also served as Vice-President and Treasurer.
Jean P. Perog
Jean P. Perog Treasurer
Mrs. Perog is a retired CPA living in Quilchena, British Columbia. She has WD and has a brother with WD. Jean has served as Treasurer of the WDA since 2005.
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