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Management of Wilson Disease
A newly published book with many contributors including Mary Graper, Vice President of Medical Affairs for the WDA and Dr. Schilsky from Yale University Medical School.
Get Involved

Discover the many ways you can help raise awareness for the WDA
We Are Wilson's

Find out how you can help us raise awareness!
2018 Annual Conference
Houston, Texas
April 27-28, 2018
Wilson Disease Association
Dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Wilson disease.
Wilson Disease Association
Support Group
and Discussion Community
Wilson's Warriors
Hear from several true warriors that are
making a difference.
A Phase 3 trial for Wilson Disease is now enrolling! ... Read More
A tragic and most somber matter ... Read More
Teva Pharmaceutical Industries Ltd., (NYSE and TASE: TEVA) today announced the launch of generic version of Syprine®1 (trientine hydrochloride) capsules, 250 mg, in the U.S. ... Read More
NEW Registry for Patients with Wilson Disease ... Read More
Cilamin Capsules Availability Notice ... Read More
The 2018 Annual Conference will be held in Houston, Texas on October 27 - 28. ... Read More
Find out more about Wilson Disease
About Wilson Disease
Find out more about Wilson Disease
Wilson disease is a genetic disorder that is fatal unless detected and treated before serious illness from copper poisoning develops. Wilson disease affects approximately one in 30,000 people worldwide. The genetic defect causes excessive copper accumulation in the liver or brain.
Wilson Disease Association Membership
Wilson Disease Association Membership
As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group
Find out how YOU can help!
Ways You Can Help
Find out how YOU can help!
Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WDA, their families, and the healthcare community. Here are a few ways you can become involved in the WDA Community.
For those effected by Wilson Disease
Patients & Families
For those effected by Wilson Disease
The WDA provides a caring community that will offer each Wilson disease family information, guidance and emotional support. We are dedicated to education, advancing treatments, and finding a cure for Wilson disease. We are here to help, and you can contact us at any time. We know from our own experience what a difference being in touch with other individuals can make to each affected family. Our desire is that you will realize the impact Wilson disease can have on you and in your family.
Wilson Disease Support Group and Discussion Community
Support Community
Wilson Disease Support Group and Discussion Community
Join many others who understand what you're going through and are making important decisions about their health.
Wilson Disease Programs & Research
Wilson Disease Programs & Research
The Wilson Disease Association supports and provides information on Wilson disease research, studies and advocacy initiatives.
Connect with WDA
Connect with WDA

 The Wilson Disease Association is very active in popular social media channels. Please feel free to connect with us.

We are looking for volunteers!
Interested in joining our team? Work with us?

Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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